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RAYNAUD'S PHENOMENON
WHAT IS RAYNAUD'S PHENOMENON?
Raynaud's (ray-NODES) phenomenon is a condition in which poor blood flow results in pain and skin color changes in affected parts of the body. Those parts of the body most commonly affected include the fingers, toes, ears, or tip of the nose. Raynaud's phenomenon usually occurs in several episodes, with each episode lasting a few minutes to an hour or more. Symptoms generally don't occur between episodes.
When this condition occurs by itself, it is called primary Raynaud's phenomenon. When it occurs along with other diseases, such as scleroderma, systemic lupus erythematosus, polymyositis, dermatomyositis, Sjogren's syndrome, or overlap syndrome (mixed connective tissue disease), it is called secondary Raynaud's phenomenon.
There is no cure for Raynaud's phenomenon, but in most cases it can be controlled with proper medical care.
WHAT HAPPENS IN RAYNAUD'S PHENOMENON?
Attacks of Raynaud's phenomenon usually occur only once in a while and usually don't cause permanent damage. Some people, however, may have frequent and severe attacks.
During an attack of Raynaud's phenomenon, the blood vessels in the affected areas - usually the fingers and/or toes - become narrower for a short time. This prevents the blood from flowing freely to the affected area. As this happens, you may notice the following signs: Change of skin color in that area. First, it may turn white because there is little blood in that area. It then may turn blue because the blood remains stagnant in the blood vessels due to improper flow. Finally, it may turn red or purple as the blood begins flowing again. Sometimes your skin may turn only white or blue. Numbness and/or coldness in that area as the blood flow slows. Pain may occur during episodes. Swelling, tingling, aching, warmth, and/or throbbing in that area as the blood begins flowing again.
Without treatment, secondary Raynaud's phenomenon can damage the affected part of the body. When blood does not flow adequately to the tissues, sores (called ulcers) may develop. If these sores are not treated, they may become infected and may take a long time to heal.
This kind of damage rarely happens in primary Raynaud's phenomenon. Therefore, it is important to find out what type of Raynaud's phenomenon you have.
WHAT CAUSES RAYNAUD'S PHENOMENON?
Doctors aren't sure exactly what causes Raynaud's phenomenon. They do know, however, that attacks often are triggered by cold temperatures and sometimes by emotional stress, such as nervousness or excitement. Using hand-held vibrating tools also can lead to Raynaud's phenomenon.
WHO GETS RAYNAUD'S PHENOMENON?
This condition can begin at any age, but it usually begins between ages 15 and 40. It occurs in three to five percent of the population and is much more common in women than in men.
HOW IS IT DIAGNOSED?
To diagnose your condition, your doctor may: ask questions about your symptoms (as already mentioned, Raynaud's phenomenon may occur as a symptom of other illnesses) take blood samples to test for other illnesses that may have similar symptoms test your fingers to see if they change color in response to cold show you pictures of hands taken during an attack of Raynaud's phenomenon to make sure that color The goal of treatment is to prevent attacks and prevent tissue damage if an attack does occur. This is done mainly by protecting yourself from the cold, by avoiding excessive emotional stress, and not using vibrating tools. In some cases medicine also may be used. Surgery usually is unnecessary. changes you've observed are not a strong, yet normal response to cold. This also will help distinguish Raynaud's pheno menon from a condition called acrocyanosis, meaning blue extremities. examine your fingers under a special microscope to look for abnormal blood vessels
WHAT IS THE TREATMENT?
To avoid attacks of Raynaud's phenomenon, make sure you are adequately protected from the cold.
COLD PROTECTION
To avoid attacks of Raynaud's phenomenon, you should keep your entire body warm at all times. Follow these tips to keep from getting too cold:
Dress warmly, especially during cold
weather and during changes of season. Wear layers of loose-fitting clothes. Wear a hat in cold weather, since much body heat is lost through the scalp. Cover your face and ears with a scarf. Wear loose-fitting boots and shoes that won't cut off your blood supply. Wear heavy socks or layers of socks. Wear thick mittens - they're warmer than gloves. Always keep a sweater or jacket with you, even during the summer. You may need it in cold, air-conditioned buildings.
Use flannel sheets, layers of blankets, or an electric blanket on a low setting. Before you get into bed, turn on your electric blanket to warm the sheets. If your hands and feet get cold when you sleep, wear mittens and socks to bed.
Keep the rooms you use most often at a comfortable temperature.
Start running your bath or shower water ahead of time so you don't touch cold water. Keep the bathroom door closed. The steam will warm the room.
Enlist help from family and friends. In the winter, for example, let someone else get the newspaper from outside or start the car on a cold day. Avoid reaching into the freezer or doing tasks that require putting your hands into cold water.
Wear thick gloves or mittens to reach into a freezer at home or at the grocery store.
Use insulated containers or wear a glove or mitten to hold cold objects such as ice-cold drinks, frozen desserts, or fruit.
Rinse and peel vegetables with warm water instead of cold.
Use warm, not cold, water when rinsing food or washing dishes.
SKIN PROTECTION
Poor blood flow may make your skin dry. It also may cause cuts, cracks, or sores to heal more slowly than normal. Follow these tips to protect your skin:
Use lotion with lanolin every day on your hands and feet.This keeps your skin from chapping or cracking.
Wash with a mild, creamy soap. Clean between your fingers and toes, but don't soak them.
Examine your feet and hands daily to check for ulcers. If you develop an ulcer, keep it clean and covered. See your doctor right away.
Protect your nails. Use a lotion to keep your cuticles soft. Don't cut your cuticles with scissors or use a sharp instrument to push them back. Gently push them back with a cotton swab soaked in cuticle remover. Carefully cut hangnails and file your nails in a rounded fashion to the tips of your fingers.
Wear rubber gloves while washing dishes.
Be aware of activities that put pressure on your fingertips, such as using vibrating tools or a manual typewriter or playing the guitar or piano. They may cause your blood vessels to narrow, thus triggering an attack.
Wear clothes made of natural fibers, such as cotton and wool. These draw moisture away from your skin.
OTHER TIPS
Don't smoke. Smoking causes blood vessels to narrow, which decreases the blood flow.
Try to avoid emotional stress. When possible, avoid situations that may make you too excited, nervous, or frightened. Ask your doctor about relaxation techniques that may help you reduce stress. Also, look into biofeedback training, which can help you learn to control your body temperature. For more information, contact your local Arthritis Foundation chapter and request a copy of the brochure Coping with Stress.
Be aware of certain drugs that may cause your blood vessels to narrow. Some of these drugs are listed in the following table. Always tell your doctors that you have Raynaud's phenomenon, and discuss any over-the-counter or prescribed medicines with them. For example, even over-the-counter cold remedies can aggravate Raynaud's phenomenon. Work in partnership with your doctors to determine which drugs are most suitable for you.
MEDICATIONS
In severe cases, Raynaud's phenomenon may be treated with drugs that keep your blood vessels from narrowing and help them dilate, such as nifedipine, diltiazem, or nitroglycerine. Type of Medicine Vasoconstrictor
Beta blocker
Adrenergic stimulator Use Headaches
Angina, High blood pressure, Migraine headaches
Colds, Respiratory symptoms, Diet aids Generic Name ergotamine
acebutolol, labetalol, metroprolol, nadolol, propanolol, timolol
phenylpropanolamine Brand Names Ergomar, Ergostat, Cafergot, Ergotmine
Sectral Normodyne, Trandate, Lopressor Cogard Inderal, Inderal LA , Blocadren
Naldecon, Triaminic, Sudafed, various cold tablets
Some of these medications may have side effects, such as: headache; palpitations; lightheadedness or dizziness. skin rash; swelling of the face or other parts of the body; dry cough; loss of taste; nausea; unusual tiredness; or others. Contact your doctor right away if you have difficulty breathing; fever or chills; or swelling of the face, mouth, hands, or feet.
Topical medications, such as nitro- glycerine ointment, also may be used.
Discuss all medications and their side effects with your doctor.
SURGERY
In rare cases, a sympathectomy may be done. This operation cuts the nerves that may be making the narrowing of the blood vessels worse. This procedure usually is not necessary and may only work for a short time.
WHAT SHOULD I DO IF I HAVE AN ATTACK?
If you have an attack, stay calm and follow these steps:
1. Gently warm your fingers or toes as soon as you can. Placing your hands under your armpits often helps.
2. Wiggle your fingers or toes. Move or walk around to try to keep your blood flowing freely.
3. When your hands start feeling cold, hold them above your head. Then swing them around as if you're throwing a softball.
4. Run WARM - not hot - water over your fingers or toes until their normal color returns. Do not use a hot water bottle or heating pad, because they may damage your skin.